Step 2: Do I need a Data Usage Agreement?

Option 1: Openly Available Limited Data — Immediately Available — No Data Usage Agreement Needed

Neuroimaging Release with Limited Phenotyping:

  • Contains imaging data, physiological data acquired during scan acquisition (cardiac and respiratory), and limited phenotyping (age, sex, and handedness).
  • No psychiatric, cognitive, or behavioral information is included.
  • Data is downloadable through Amazon Web Services or NITRC. Linking information here.

Option 2: Easily Accessible Full Data Resources — Requires Data Usage Agreement

Neuroimaging + Full Phenotypic Release:

  • Contains imaging data, physiological data acquired during scan acquisition (cardiac and respiratory), and a full high-dimensional phenotypic protocol. (See protocols page for RS1 here and RS2 here.)
    • DSM-IV based psychiatric diagnostic assessment.
    • Dimensional psychiatric and behavioral assessment questionnaires (item-level responses included).
    • Neuropsychological testing.
    • Cognitive/behavioral performance measures.
    • Basic laboratory measures.
    • Actigraphy (for a minimum 1 night of sleep).
    • Biosamples archived with NIMH repository for genetic analysis.  Linking information here.
  • A Data Usage Agreement (DUA) is required.
    • Expected completion time: < 5 minutes
    • Signature and notarization by appropriate institutional representative is required.
  • Data is downloadable through the Longitudinal Online Research and Imaging System (LORIS) database1 and Collaborative Informatics and Neuroimaging Suite (COINS) database2.

1 Fully supported by NKI-Rockland program staff. 

2 Limited support by COINS staff.